Sunday, September 2, 2007

Update #40

From Lisa:

Nick went to church for the first time last Sunday, August 26th. While he was happy, he was also trying to figure out where he fits in now. Nicholas has always been one of those kids who is out playing football, games and rough housing. Now he has to learn how to reach out and have fun from his wheelchair and others need to learn how to reach out to him. It will take time but I'm sure he will do it. He has a great sense of humor and a tender heart going for him.

Nick was also sick on Sunday. He was vomiting throughout the day. This has been going on for a few weeks - ever since his g-tube was taken out. His blood pressure has also been bouncing about so his Dr. decided to run some different tests during the week. He had an upper GI, renal sonogram, echo gram and an o2 sensor for a couple nights. We received the results of those tests and his MRA (like an MRI but with dye injected to show the blood flow through the arteries) and all of the tests came back negative.

Also God healed the dissected artery COMPLETELY! He has 100% blood flow through that artery again! He will be taken off lovinox (a blood thinner) and put on aspirin. So while all of that is wonderful news, we will be leaving the hospital this Friday, Sept. 7th with no answers as to why Nicholas had a stroke. This is very hard for me. I want answers. The doctors at Children's have been wonderful. They listen patiently as we ask "what about this" questions, but there just aren't any concrete answers. My oldest son says God is trying to break me of something. I know he is right. There is this fine balance of doing everything you can for your child and trusting God with what you can't control. "Be still and know that I am God." Psalm 46:10

We had a great meeting with the Rehab Team at Children's and with Nick's principal and school speech therapist. Dwight and I left there feeling so blessed to have so many people supporting our son and helping us to take this step by step. Nick will have at least 1 week between discharge from the hospital and starting back to his school (yes the school he was attending before the stroke). This is an amazing undertaking for the school! They could turn him away and have him go to a school "more suited" for him, but they have taken the attitude that they can be a very important part in his rehabilitation. They are getting him an aid, a lap top, possibly an occupational therapist at school, adjusting his schedule, and whatever else he might need - just for Nicholas. I will also be attending with Nick (more of a fly on the wall) to help with his transition.

Our family continues to be amazed at the kindness of so many people. Thank you!! My eyes and heart well with joy and tears and I keep standing in awe at what God has done and continues to do.

Lisa

5 comments:

Anonymous said...

Nick I am so happy that you have made all this progress. I am glad to see you coming back to school soon. We all miss you, hope to see you soon.

Anonymous said...

Nick that is so awesome that you went to church and you are almost ready to come back to school thats pretty cool.keep up the hard work.
Michael Melanese.

Anonymous said...

Hey, Nick
Glad to hear of all this progress! I just wanted to say that i am really excited for you to come back to school! You are in my class...just like last year!

See you soon,
Michael Dalman

Anonymous said...

nick im sooooo excited to see you! i cant wait for you to come back! love, macey

Anonymous said...

Lisa,
We truly do not see God's hand all of the time. We are so temporal and earthly. Our mind can only trust for so long. But it is at this point that we have to trust His heart. Our heart and soul bound to His heart and soul. As a mom, I too want to know everything about my children and especially the "why's." I cannot begin to imagine the depth of faith you have grown nor the strength of your love for Him. I shall pray that God will reveal Himself to you so you can receive His peace that passes all understanding; even when we have very little understanding.
Mrs. LaPlante (Sherri)4th grade Teacher at LFCS